Ruth Aguilar

Deeply committed to advancing equity for individuals with intellectual and developmental disabilities (I/DD) through policy, education, and systems change. Over a decade of experience driving impact across nonprofits, state contracts, and grassroots initiatives. Proven track record of connecting underserved communities to critical Medicaid waiver services, building cross-sector coalitions, and developing sustainable, family-centered programming. Lived experience as a parent and community leader informs and fuels every aspect of advocacy.

• Parents of Extraordinary Children, Founder & Board Chair, 2014, 2021, - Co-founded and led a nonprofit organization dedicated to social connection and advocacy for children and youth with disabilities., - Recruited and coordinated a team of volunteers to plan inclusive events and resource fairs., - Served as Chair of Public Relations and Resource Development, amplifying family voices and driving local impact.
• Rotary Club of D6450, Member & International Project Lead, - Spearheaded a $1.5M medical equipment initiative that equipped three clinics in Mexico with essential care infrastructure., - Coordinated international partnerships and volunteer mobilization for successful implementation.
• Caring Across Generations Fellowship 2024

Proud mother of a 20-year-old daughter with Rett Syndrome, inspiring a lifelong commitment to inclusion and systems transformation.